Advance care planning refers to planning for your future healthcare, and ensuring that your healthcare wishes are understood and respected. In the event of you being unable to communicate your preferences, an advance care plan outlines the decisions you have made about the treatment and care you would or would not like to receive.
Advance care planning involves discussing your wishes with doctors and loved ones. It should be an ongoing process of both written and verbal communication with your family, carers and healthcare providers about your values and preferences. This ensures that everyone understands and respects your wishes and can advocate for you as needed. These conversations and any documentation should be revisited to update your preferences if and when they change, especially during significant health changes.
An advance care directive is a formalised, written version of your advance care plan. The directive can be used to formally nominate a substitute decision-maker, who makes healthcare decisions for you according to your preferences if you are unable to make decisions yourself. This document is legally binding and must be adhered to.
For a visual summary of key advance care planning information, see the image below:
Advance care planning benefits you and everyone involved in your care, including family, carers and healthcare professionals by improving ongoing and end of life care, reducing stress and anxiety for your loved ones, and preventing your doctors from making unwanted treatment decisions. If there is no documentation or substitute decision-maker to communicate your preferences, the doctors will decide on treatment.
The process to create an advance care directive varies between states and territories in Australia. To understand the process in each individual state or territory, you can visit Record Your Choices | Advance Care Planning.
You can reach out to palliative care teams or social workers for help and ask them to guide you through the advance care planning process. If you have any questions about the legal aspects of advance care directives in Australia, consider consulting with a legal professional to ensure your documents are in order.
To learn more about advance care planning, access the resources below:
Further information about Advance Care Planning:
Advance Care Planning Australia
Advance Care Planning Australia is a national project, funded by the Australian Government Department of Health and Aged Care, that assists Australians to make the best choices for their future health and care. They provide advice and support on advance care planning across Australia, provide training, education and produce bespoke information for diverse communities and specific health settings.
If you are unsure on Advance Care Planning and want a better understanding, the Getting Started Guide is a great place to begin.
Advance Care Planning information for Indigenous Australians:
Indigenous Advance Care Plans - Palliative Care Australia
Advance care planning will often be approached differently if you are an Aboriginal and Torres Strait Islander person. The following resource contains culturally safe information and a video that may help you to understand Advance Care Plans and how they can assist you to discuss your choices.
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